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Tuesday, April 22, 2014

Iz has always been clumsy.  As a baby, we chalked it up to infant unsteadiness.  When she fell frequently learning to crawl, we chalked it up to weak arms.  As a walker, new balance.  And then came the age where we expected her to grow out of it....and she was still falling.  Sometimes its a trip, sometimes there is no reason. She can be standing or sitting still and fall over.  She would go to get on a chair and completely miss it and fall in front of it.  She would head for a doorway and walk into the frame or even the wall beside it.  She walks into furniture.

We started seeing an ophthalmologist.  She has astigmatism and is developing nearsightedness but it wasn't bad enough to give her glasses so young.  They tested her depth perception and it seemed to be okay.  She goes every six months to keep an eye on her eyesight and the occasional droopy eyelid.

She saw an orthopedist to see if there was a structural problem that could cause her toe walking and balance issues.  She was fine.

And now we see the neurologist, mostly for the speech regression but the falling and walking into things (and the fact that she often doesn't put her hands out to catch herself, she just falls into her face) are actually what prompted the EEG and MRI that discovered the abnormal brain waves and brain cyst.

Today we added the dentist into the mix.  With the boys, I started them at the dentist around 18 months but I couldn't really find anyone that would take Iz.  With her heart, we either heard, nope, won't see her at all, or were given an age range of 3-5 before she could be seen.  But recently I noticed her front two teeth, the ones she hits most often when she has a fall and doesn't catch herself with her hands, are discoloring and looking sort of greyish.  So I needed to find a dentist who would see her and finally, last week, one took her on!  We had to wait for cardiac clearance but they got her in today....and she refused to open her mouth :p

She was incredibly anxious and a little scared but the dentist was very kind and patient.  She didn't get a good look at Izzy's teeth but between what little she did see and what I described, she thinks one (or many) of Iz's falls damaged the nerves and they are dying or dead already.  We have a referral to a pediatric dentist that can do various types of sedation so they can relax her or knock her out and get a really good look at her teeth to confirm what is actually happening and get a treatment going.  If it is dead nerves, she would most likely need a baby root canal because she's too young to take a wait and see approach.  The dentist said with an older kid, they watch to make sure an infection doesn't develop and let the dead tooth come out on its own because the adult teeth are coming soon.  But Iz is too far away from adult teeth and baby teeth falling out too early can mess with the adult teeth coming in properly.  As much as I wish there was another explanation, I'm not sure I can sell that one to myself--I'm watching those tiny teeth get darker and darker and even before we spoke to the dentist, I thought those teeth were dying :(  Poor kid can't catch a break!

Hopefully we can get into the pediatric dentist soon to confirm and figure out our next step.

Sunday, April 20, 2014

A busy Easter day....

Iz is exhausted from her busy Easter day :p  Almost as soon as we got home tonight, she was asking to go to bed early :p  She's all tucked in and sound asleep!  Too bad the boys are still wide awake--I could do with an early bedtime myself :p  However, its spring break and so they know they have a later bedtime plus I kinda need to do some homework so they are playing Lego Harry Potter while I slog my way through spreadsheets.

However, I'm taking a short break to post some pictures :)

Last year, Iz seemed slightly confused at first at this egg hunting thing but once she saw what other kids were doing, she was all for it.  This year, she knew exactly what to do and took off running to fill her basket :)
B is FAST and zoomed around at top speed filling his basket. It was quickly overflowing and I'm pretty sure I spotted Iz picking up eggs that were falling out of his basket as he ran LOL
We also did some egg dyeing/decorating.  Iz and B were very prim and proper and careful with theirs but S liked the way the dye felt and got quite messy :p  His eggs were gorgeous, though, when he was all done--they looked like marble.
It has become tradition in our house that once the eggs are emptied and the candy sampled and the money counted, the empty eggs are scattered about again and they hunt for them all over again :p  Usually S is in charge of putting the eggs back out.  Eventually we move to just tossing them out into the grass, the kids gather, and we'll toss them again :p  Iz thought this was the best thing ever ;)